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Forms & Resources

The following forms and resources can be downloaded and/or ordered (use the plus sign [+] to expand the menus):

To order blood spot cards, contact the Newborn Screening Laboratory at BC Children's Hospital:

Phone: 604-875-2148


Note: Plan ahead and allow enough time for the cards to reach you by regular mail, so that you do not run out of cards.

Health care providers can order the Parent Information Sheet: A Simple Blood Test Could Save Your Baby’s Life in English (NEW).

Send an email to with the following information:

  • desired quantity (10, 25, 50, 100); and
  • shipping address.

The Parent Information Sheet is also available in the following languages for download only:

If you are in need of the Parent Information Sheet in other languages, please let us know via your email order, and we can add it to the future translation request list. 

If parents do not wish to have their child's blood spot card stored once newborn screening tests are completed, they have two choices - have them fill out one of the following forms:

Patients must be referred to Medical Genetics by their health care provider. Both medical genetics programs listed below offer face-to-face and possibly (but limited) telehealth counselling for those unable to travel. Telephone counselling is possible if telehealth is not available.

Medical Genetics Program
BC Women's Hospital & Health Centre
Room C234, 4500 Oak Sreet
Vancouver, BC V6H 3N1

Phone: 604-875-2157
Fax: 604-875-2825

Department of Medical Genetics
Victoria General Hospital
1 Hospital Way
Victoria, BC V8Z 6R5

Phone: 250-727-4461
Fax: 250-727-4295


How is a disease nominated for newborn screening in BC?

  • There is a formal process in British Columbia for individuals or organizations to nominate a condition for newborn screening. The process begins with the completion of a nomination form (Form 1).
  • Completed nomination forms can be submitted to Newborn Screening BC via the Perinatal Services BC email (

What happens when a disease is nominated?‎

  • Once nomination forms are received, they are sent to the Medical Director to be reviewed and brought to the next scheduled Newborn Screening Advisory Committee (NSAC) meeting for consideration.
  • The NSAC uses a discussion framework to determine whether the condition is a potential candidate for newborn screening and warrants further detailed review, or the condition is not an appropriate target for newborn screening at the time. A formal response is communicated back to the nominator following this meeting.
  • If the NSAC decides that a more in depth review is indicated, a working group is established to review the evidence for screening for that disease using published literature and experience from other newborn screening programs. Once a fulsome review is complete (which can take several months), the working group presents their findings to the NSAC.
  • Based on the findings of the working group, the NSAC either recommends screening for the disease, or does not recommend screening for the disease. NSAC may request additional information in order to make their decision.
  • NSAC recommendations are sent to Newborn Screening BC as part of Perinatal Services BC (PSBC), who in turn are responsible for systems planning, operations, and health economics considerations. PSBC is then responsible for formal reporting to PHSA and the BC Ministry of Health for ultimate decision-making whether to approve and commit funding to screening for the disease.

SOURCE: Forms & Resources ( )
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