Data Requests

​​​​​​​​Perinatal Services BC (PSBC) coordinates and supports health care providers, system leaders, researchers, and policymakers to advance maternal, fetal, and newborn health across the province. We are committed to enabling access to the data we steward for bona fide, public‑interest research, surveillance, program planning, and quality improvement initiatives. We ensure the need for high‑quality insights is balanced with a strong dedication to protecting the privacy and confidentiality of individuals.

All requests for data are managed in accordance with the requirements of the Freedom of Information and Protection of Privacy Act (FIPPA) of British Columbia. PSBC reviews each data request for completeness and content. Only completed applications for data requests will be considered. ​​

​Types of requests

PSBC provides Aggregate and Research data services.  Please select the below tabs to learn more about each.​

Aggregate

​Aggregate data are typically used for quality improvement, evaluation, or planning purposes by health organizations and other governmental agencies. In cases where aggregate data are requested for research purposes, such requests will be considered a research request instead.

Aggregate data requests include summed or categorized data reported at provincial or sub-provincial levels.  Results will not include identifiable data, whether direct or indirect and is considered to pose no potential harm to groups or individuals.

  • Use the data only for the purpose for which you requested it. Additional uses of the data must be approved by PSBC.
  • Do not use the aggregate information either alone or with other information to attempt to identify an individual

Turnaround time is dependent on available staff resources, so please submit requests with as much advance notice as possible. In circumstances where the request is time sensitive, PSBC will try to accommodate if resources are available. ​

Before submitting your request

Please check the Indicators Index to see if the data you want are already published on our website. Otherwise, please proceed with making your request through the link below.

If you have any questions, please contact us at psbc.darc@phsa.ca​​

Data request​​​​
Research

Researchers can access BCPDR data through the following channels:

If you have any questions or concerns regarding your data request, please contact us at psbc.darc@phsa.ca.

PHSA Data Access Request (DAR)

​​Please review before making request: 

Aggregate data without personal information that are expressed in summary form (i.e. total births, average age of mother at delivery, total cesarean sections, etc.) are also available for research purposes and must adhere to research material reviews. All research requests are reviewed by the PSBC Research Review Committee on a monthly basis.

Please review the following sections:

To be considered for approval, a request must:

  • ​​be for the time-limited purpose of addressing a specific set of research questions;
  • not involve use of data for administrative or any other non-research purpose, or for ongoing programs of research, unless specifically approved;
  • be in the public interest, i.e., improves the welfare of the population;
  • not be for proprietary research, such as research done for commercial marketing purposes;
  • have scientific merit;
  • be accessed only in Canada;
  • meet PHSA's new streamlined legal terms for data security and confidentiality; and
  • have approval from a recognized research ethics board, as defined by the Tri-Council Policy Statement: Ethical Conduct for Research Involving Humans - TCPS2 (2018).

Please note that the above requirements are necessary for review but are not exhaustive for approval by the Research Review Committee. Additional requirements may arise that are project-specific. 

Please allow a minimum of six (6) months from the date of application to receipt of record-level data for research purposes. 

Filling out the online Data Access Request takes time, planning, and attention to detail. Timely access to data is affected by inadequately completed applications — please be very thorough in completing the application. If you have questions or are unclear on any aspects of the application process, please contact PSBC prior to submitting your online Data Access Request for consideration by the Research Review Committee.

Once your application had been approved, you will be asked to sign an "Agreement to Proceed with Data Preparation" document, which will include a quoted fee to complete the data cut.

Please note that all research outputs (including but not limited to journal articles, abstracts, slide decks for public presentations, and reports) must be submitted for review to PSBC prior to public disclosure. PSBC commits to review journal manuscripts within 45 calendar days and abstracts, slide decks, and poster presentations within 14 calendar days. Researchers are able to proceed with public disclosure if there is no response within the given time frame.

 

To make an amendment to a previous Application for Access to Health Data for Research, you must complete an Amendment to Data Access Request Form. Please contact PSBC (psbc.darc@phsa.ca) for your project specific link to the Amendment to Data Request Form. 

Amendments to studies should be changes within the scope of the original study. Changes such as requesting additional variables, addition/removal of project members, or a change to the requested data retention date must be submitted as Amendments. 

New studies that are related to (but not included in) the original studies should be submitted as a new DAR. 

Also, projects that undergo changes to data collection methods or study populations should be submitted in a new DAR for review and approval. 

  1. Review Frequently Asked Questions (FAQs) for Access to Health Data for Research.
  2. Complete the online PHSA Data Access Request (DAR) and BCPDR Data Field Checklist embedded in the online form itself.
    Note: As of December 1st, 2020 older versions of the PSBC DAR will not be accepted. Please ensure to use the new online version of the PHSA Data Access Request (DAR) Form linked above.
  3. Applicant will be contacted after application has been reviewed by PSBC staff. 
  4. Requests will be reviewed by the PSBC Research Review Committee, which meets on a monthly basis. The committee may have additional questions, in which case the applicant may be contacted for further clarification of the request. 
  5. Once approved, the applicant must sign an Agreement to Proceed with Data Preparation, which includes agreement to pay any associated fees. An estimated turnaround time will also be provided.
  6. The applicant will be notfied when the request is complete, and data are ready to be released.
  7. After approval, any changes to the research question(s), researcher(s), or time frames, as well as new requests for additional data elements or years must complete the online Amendment to Data Access Request Form for review and approval by PSBC. Please contact PSBC (psbc.darc@phsa.ca) for your project specific link to the Amendment to Data Request Form.
  8. When the data retention period has expired, the applicant must confirm destruction of all data using the online Project Closure & Data Destruction Form. Please contact PSBC (psbc.darc@phsa.ca​) for your project specific link to the Project Closure & Data Destruction Form.
 

Document

  Version &
  Revision Date

FAQs - Data Access Requests (DAR) for Research Purposes  Revised

  V1.5
  September 2023

BCPDR Data Field Checklist
(Appendix embedded to online DAR Form)

  V1.2.2
  September 2023

Instruction Guide for the Data Access Request Form


 


 
If you have any questions or concerns regarding your data request, please contact us at psbc.darc@phsa.ca​.

If you have any questions or concerns about the PHSA Data Access Request platform, please contact researchadministration@phsa.ca
Research



Last Updated: Monday, November 30, 2020

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