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Biliary Atresia

Biliary atresia is a rare but serious liver disease that begins to affect newborns in the first month of life. It is the most common reason why children need a liver transplant and life-threatening if not treated.
Update

Effective April 2015, the BC Infant Stool Colour Card is a nine-colour card. There are six boxes depicting abnormal stool colour and three boxes depicting normal stool colour. The previous version contained three abnormal and three normal stool colours.

Changes were also made to the text to make instructions clearer and to emphasize that if the family goes to their health care provider during the first month concerned about their infant’s stool colour, they should take the card with them to help facilitate follow-up. 

All changes were made to reflect feedback from care providers and parents.

The new card has been translated into multiple languages - see box on the right. Please note these cards are not intended to be used for the colours. Families should always refer to the English card for accurate colours and refer to the translated version for instructions. 

We have also updated the Nurse Script to support nurses and midwives with their communication to families at discharge.

Contact Us

If you have any questions, please contact us at:

604-877-2121
psbc@phsa.ca 


Training

Background for Health Care Providers

In March 2014, we posted a presentation by Dr. Rick Schreiber, Director, BC Pediatric Liver Transplant Program at BC Children's Hospital. Topics include biliary atresia, the Canadian experience, a pilot feasibility study, and the Biliary Atresia Home Screening Program, which launched in BC in 2013. Note: We recommend watching the video with the presentation slides.

Training for Nurses and Midwives

In March 2014, we posted a training video developed specifically for maternity care nurses and midwives to learn how to teach new parents about biliary atresia home screening. Please note: As of April 2015, the stool colour card now has nine colours (six abnormal, three normal).

Download the Nurse Script to help communicate with families at discharge.

What To Do

If an infant older than two weeks is still jaundiced and presents at your office with an abnormal stool colour, order a blood test for bilirubin.




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